Information between 5th March 2024 - 14th April 2024
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Parliamentary Debates |
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Disability Benefits
44 speeches (8,647 words) Tuesday 26th March 2024 - Westminster Hall Department for Work and Pensions Mentions: 1: Tanmanjeet Singh Dhesi (Lab - Slough) research found that the current disability assessment system is not fit for purpose for those living with multiple - Link to Speech |
Prescription Charges: Long-term Health Conditions
11 speeches (4,445 words) Monday 11th March 2024 - Westminster Hall Department of Health and Social Care Mentions: 1: Christina Rees (LAB - Neath) the impact of prescription charges for the medication that she needs to alleviate the symptoms of her multiple - Link to Speech 2: Preet Kaur Gill (LAB - Birmingham, Edgbaston) with chronic anxiety or depression, or the fatigue and disabilities associated with conditions such as multiple - Link to Speech |
Select Committee Documents |
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Wednesday 6th March 2024
Oral Evidence - Carers UK, Carers Scotland, University of Sheffield, Centre for Social Justice, Terry Kirton, and Hertfordshire County Council Work and Pensions Committee Found: For example, early-onset multiple sclerosis is a disease that is particularly prominent among women |
Written Answers |
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Health: Technology
Asked by: Tanmanjeet Singh Dhesi (Labour - Slough) Tuesday 26th March 2024 Question to the Department of Health and Social Care: To ask the Secretary of State for Health and Social Care, whether the NHS is taking steps with (a) technology developers and (b) academia to help accelerate the introduction of innovative medical solutions. Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care) In February 2023, the Department published the MedTech strategy which outlined how we will work with key stakeholders, including technology developers and academia, to ensure the health and social care system can reliably access safe, effective, and innovative medical technologies. To accelerate the introduction of innovative medical solutions, we are working with stakeholders at pace to implement solutions to streamline and join-up the innovation adoption pathway, from providing clear signals to industry on the innovation we need, to reforming regulation, comparative assessment, and with clearer procurement pathways.
In October 2023, the Government announced £30 million of investment in the Health Tech Adoption and Acceleration Fund. The fund is supporting integrated care systems to invest in the latest technology to help cut waiting lists, speed up diagnosis, and deliver new and improved ways to treat patients. Thanks to this fund, tens of thousands of patients at risk of kidney disease will be able to get tested from the comfort of their own homes. In February 2024, the Government announced eight innovative tech companies who will be supported to bring their devices to market through the Innovative Devices Access Pathway (IDAP). One of the technologies allows chemotherapy patients to self-test at home, using a finger-prick blood test, for neutropenic sepsis. Another is a smartphone app that delivers exercises, cognitive behaviour therapy, and targeted physical activity in a personally customisable format to help patients manage multiple sclerosis. |
Health: Technology
Asked by: Tanmanjeet Singh Dhesi (Labour - Slough) Tuesday 26th March 2024 Question to the Department of Health and Social Care: To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help encourage innovation in the development of healthcare technology for at home use. Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care) In February 2023, the Department published the MedTech strategy which outlined how we will work with key stakeholders, including technology developers and academia, to ensure the health and social care system can reliably access safe, effective, and innovative medical technologies. To accelerate the introduction of innovative medical solutions, we are working with stakeholders at pace to implement solutions to streamline and join-up the innovation adoption pathway, from providing clear signals to industry on the innovation we need, to reforming regulation, comparative assessment, and with clearer procurement pathways.
In October 2023, the Government announced £30 million of investment in the Health Tech Adoption and Acceleration Fund. The fund is supporting integrated care systems to invest in the latest technology to help cut waiting lists, speed up diagnosis, and deliver new and improved ways to treat patients. Thanks to this fund, tens of thousands of patients at risk of kidney disease will be able to get tested from the comfort of their own homes. In February 2024, the Government announced eight innovative tech companies who will be supported to bring their devices to market through the Innovative Devices Access Pathway (IDAP). One of the technologies allows chemotherapy patients to self-test at home, using a finger-prick blood test, for neutropenic sepsis. Another is a smartphone app that delivers exercises, cognitive behaviour therapy, and targeted physical activity in a personally customisable format to help patients manage multiple sclerosis. |
Secondary Legislation |
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National Health Service Commissioning Board and Clinical Commissioning Groups (Responsibilities and Standing Rules) (Amendment) Regulations 2024 These Regulations amend the National Health Service Commissioning Board and Clinical Commissioning Groups (Responsibilities and Standing Rules) Regulations 2012 (S.I. 2012/2996) (“the Standing Rules”). They are made under the National Health Service Act 2006 (c. 41) (“the 2006 Act”), as amended by the Health and Care Act 2022 (c. 31) (“the 2022 Act”) and they amend the requirements, or ‘standing rules’, imposed on NHS England and integrated care boards. On 1st July 2022, the NHS Commissioning Board was renamed NHS England and integrated care boards became the successors of clinical commissioning groups, in accordance with the 2022 Act. Department of Health and Social Care Parliamentary Status - Text of Legislation - Made negative Laid: Wednesday 6th March - In Force: 1 Apr 2024 Found: (3), or in regulation 53(1)(a) to (b)”. (11) Omit Part 10 (standing rules: funding of therapies for Multiple |
Department Publications - Transparency |
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Friday 12th April 2024
Home Office Source Page: Non-technical summaries granted in 2024 Document: Non-technical summaries: projects granted in 2024, January to March (PDF) Found: For example, Multiple Sclerosis (MS) is a focus of the research in this project. |
Department Publications - Guidance |
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Tuesday 9th April 2024
Department for Work and Pensions Source Page: Employing disabled people: Disability Confident and CIPD manager’s guide Document: Recruiting, managing and developing disabled people: a practical guide for managers [print-ready PDF] (PDF) Found: Some conditions are automatically considered disabilities, such as cancer, HIV infection and multiple |
Tuesday 9th April 2024
Department for Work and Pensions Source Page: Employing disabled people: Disability Confident and CIPD manager’s guide Document: Recruiting, managing and developing disabled people: a practical guide for managers [accessible PDF] (PDF) Found: Some conditions are automatically considered disabilities, such as cancer, HIV infection and multiple |
Non-Departmental Publications - News and Communications |
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Mar. 14 2024
Employment Appeal Tribunal Source Page: Rentokil Initial UK Ltd v Mr M Miller: [2024] EAT 37 Document: Rentokil Initial UK Ltd v Mr M Miller [2024] EAT 37 (PDF) News and Communications Found: In March 2017 he was diagnosed with multiple sclerosis. |
Non-Departmental Publications - Transparency |
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Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 29 May 2023 Document: FOI 23/351 - attachment 1 (PDF) Transparency Found: Multiple Sclerosis Gene tics Consortium 2007 , International Multiple Sclerosis Genetics Consortium |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 4 December 2023 Document: FOI 23/774 - attachment 1 (PDF) Transparency Found: Sensory distu rbance (336), Sensory loss (291), Neuropathy peripheral (263), Myelitis transverse (86), Multiple |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 4 December 2023 Document: FOI 23/857 - attachment 2 (PDF) Transparency Found: Disturbance in attention 3 0 Migraine headaches Migraine 23 0 Migraine without aura 1 0 Multiple |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 4 December 2023 Document: FOI 23/736 (PDF) Transparency Found: variation to extend the therapeutic indication for Tecfidera to include treatment of relapsing remitting multiple |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 4 December 2023 Document: FOI 23/774 - attachment 2 (PDF) Transparency Found: Sclerosis MSSR Monthly Summary Safety Report NA Neuralgic Amyotrophy NAbs Neutralizing Antibodies |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 18 December 2023 Document: FOI 23/905 - attachment 3 (PDF) Transparency Found: types 1 and 2 Chronic Neurological diseases Generalised convulsions Dementia Demyelination multiple |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 18 December 2023 Document: FOI 23/908 - attachment 3 (PDF) Transparency Found: Exertional headache 1 External compression headache 1 Thunderclap headache 1 Tongue paralysis 1 Multiple |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 18 December 2023 Document: FOI 23/905 - attachment 2 (PDF) Transparency Found: sclerosis No Hemiplegia No Parkinson’s disease No Neuron motor disease No Down's syndrome No |
Mar. 14 2024
Medicines and Healthcare products Regulatory Agency Source Page: Freedom of Information responses from the MHRA - week commencing 18 December 2023 Document: FOI 23/905 - attachment 4 (PDF) Transparency Found: and 2 Yes Chronic Neurological diseases Generalised convulsions No Dementia No Demyelination multiple |
Scottish Government Publications |
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Thursday 28th March 2024
Agriculture and Rural Economy Directorate Source Page: National Islands Plan Annual Report 2023 Document: National Islands Plan Annual Report 2023 (PDF) Found: Additionally, the Scottish Ballet runs a specific programme for individuals with multiple sclerosis |